PRESS RELEASE: February 10, 2015 08:00 AM Eastern Standard Time SAN CARLOS, Calif.--(BUSINESS WIRE)--According to a recent study in the Annals of Oncology, lung cancer fatalities are set to overtake breast cancer deaths among European women for the first time this year. It is predicted lung cancer deaths for women in Europe will reach 14.24 per 100,000 of the population in 2015. “The ALCF has come together with other leading organizations to work together to educate patients and doctors with the goal of eradicating lung cancer.” To address this, representatives from the Addario Lung Cancer Foundation (ALCF) and the Addario Lung Cancer Medical Institute (ALCMI), Bonnie Addario and Scott Santarella, along with representatives from the University of Torino and Women Against Lung Cancer in Europe (WALCE), Prof. Giorgio Scagliotti and Prof. Silvia Novello and Stefania Vallone, agreed to form a mutually beneficial working partnership to the benefit of lung cancer patients worldwide. “There is an immediate need to address the lung cancer epidemic as a global issue,” said Bonnie Addario, Stage 3B lung cancer survivor and founder of the ALCF and ALCMI. “The ALCF has come together with other leading organizations to work together to educate patients and doctors with the goal of eradicating lung cancer.” “While patient advocates around the world have played an important role in raising lung cancer awareness, misinformation continues to surround this disease, creating barriers to treatment and patient care,” said Stefania Vallone. “We are calling on the general public to help correct misperceptions around lung cancer and highlight the disease for what it truly is– a complicated illness with many causes that can affect anyone, regardless of age, gender or smoking history.” The basis of the partnership includes public relations, marketing and promotional projects, joint patient educational programs, shared patient services projects and clinical trial/study initiatives. Examples of these include:
For those interested in learning more about ALCF, visit www.lungcancerfoundation.org and follow its activities on Twitter and Facebook. For those interested in learning more about WALCE visit www.womenagainstlungcancer.eu and follow its activities on Twitter and Facebook. About the Bonnie J. Addario Lung Cancer Foundation The Bonnie J. Addario Lung Cancer Foundation (ALCF) is one of the largest philanthropies (patient-founded, patient-focused, and patient-driven) devoted exclusively to eradicating Lung Cancer through research, early detection, education, and treatment. The Foundation's goal is to work with a diverse group of physicians, organizations, industry partners, individuals, patients, survivors, and their families to identify solutions and make timely and meaningful change and turn lung cancer into a chronically managed disease by 2023. The ALCF was established on March 1, 2006 as a 501c(3) non-profit organization and has raised more than $20 million for lung cancer research and related programs. About the Addario Lung Cancer Medical Institute The Addario Lung Cancer Medical Institute (ALCMI), founded in 2008 as a 501c(3) non-profit organization, is a patient-centric, international research consortium driving research otherwise not possible, evidenced by ALCMI's current clinical studies CASTLE, INHERIT EGFR T790M, and the Genomics of Young Lung Cancer. ALCMI overcomes barriers to collaboration via a world-class team of investigators from 22+ institutions in the U.S. and Europe, supported by dedicated research infrastructures such as centralized tissue banks and data systems. ALCMI directly facilitates research by combining scientific expertise found at leading academic institutions with patient access through our network of community cancer centers – accelerating novel research advancements to lung cancer patients. About WALCE WALCE is an European non-profit, lung cancer patient-focused organization founded in Italy in 2006 with the aim to educate, support and advocate for lung cancer patients and their caregivers and to circulate more accurate and up-to-date information in terms of prevention, diagnosis and therapy. WALCE is included in a national and international network and cooperates with different stakeholders at any level with this purpose to empower patients and general public and eradicate the stigma which surrounds lung cancer. Contacts Perry Communications Group Julia Spiess Lewis, 916-658-0144 julia@perrycom.com
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As an affiliate of The Bonnie J. Addario Lung Cancer Foundation, The Joan Gaeta Lung Cancer Fund is proud to support The Addario Lung Cancer Medical Institute (ALMCI) with 85% of our net proceeds. We continue to be very excited about ALCMI, the progress they have made, and the progress they will continue to make in the fight against lung cancer. ALCMI looks forward to launching many new innovative projects next year to advance their research initiatives, including the Epidemiologic Features in Young People with Lung Cancer, a follow-up to their Genomics of Young Lung Study, and their Biospecimen Big Data Project. As a follow-up to their Genomics of Young Lung Study, they plan to examine the Epidemiologic Features in Young People with Lung Cancer to understand the unique pathology and drivers of this disease in those under 40 years of age. They also look forward to launching their Biospecimen Big Data Project to create a centralized repository of donated patient tissue, blood, etc. and patient-reported information housed under one data umbrella. This first-of-its-kind data bank would allow patients and clinicians, regardless of where they live, to participate and opt-in to share information to help determine effective treatments, standard of care, and to establish a platform for patients to share their experiences. Another exciting collaboration involves clinical development of an anti-cancer vaccine that essentially “trains” a given patient’s immune system to potentially recognize and target his/her specific cells. These are just a sampling of the many innovative initiatives under development. Learn more about these important new initiatives by contacting Steve Young at syoung@alcmi.net. One of The Bonnie J. Addario Lung Cancer Foundation's (ALCF) most important services in 2015 will be our their new 24/7 Patient Web Portal, an all-encompassing, centralized “go-to” hub embodying what they mean when they say that ALCF is a “patient-first, patient-focused” organization that takes a 360 degree approach to living with lung cancer. Set to launch early this year, this unique resource will connect patients/caregivers to a range of programs to support, guide, educate, empower and comfort them throughout their lung cancer journey. The Portal’s landing page is a new, powerful, interactive 3-dimensional Patient Education/Communications Center that is the first-of-its-kind in proactively providing real-time medical/scientific breaking news to patients/caregivers with the option to engage in dialogue with ALCF’s Director of Research & Medical Affairs and/or our Education Programs & Services staff. This Center also opens the door to our Patient Community Resources section that links to multiple resources for lung cancer patients and provides access to patient-to-patient networking and peer-to-peer mentoring. The portal provides the latest information on new treatments/therapeutics, diagnostics, prognostics and exciting developments in research that have immediate impact on lung cancer patient lives. Individuals may opt-in to access information in a way that works best for them: through daily updates/news flashes sent to their email or via ALCF’s smartphone app, on their website, or through a monthly newsletter. Many thanks to Genentech for their support of this critical new patient service! Please share your suggestions/comments about what you would like featured on the Patient Web Portal. Contact Dr. Guneet Walia at guneet@lungcancerfoundation.org. |
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