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11/14/2017

ALCF and ALCMI: Who They Are and What They Do

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We are about halfway through Lung Cancer Awareness Month and I would like to offer some information about a fantastic organization. If you are reading this,  you likely know about this group. But, even if you do, I encourage you to sit back with your favorite beverage and take a few minutes to watch the video at the end of this post.

When supporting any cause or charity with a financial gift, prudent questions are “Where does the money go?”, “How effective is the organization?”, “Is it worthy of my support?”, "What are they doing?", "What have they done?" I ask these questions myself before choosing to financially support any charitable cause.

This video, narrated by their Senior Director of Patient Services and Programs, Danielle Hicks, does an excellent job of answering these questions for The Bonnie J.  Addario Lung Cancer Foundation (ALCF).

My family and I met the Addarios shortly after our mother died in 2007.  We were immediately struck by their sincerity, warmth - and tenacity.  But, we were also impressed by their team and how they were attacking the lung cancer problem with intelligence and professionalism.  In 2010, The Joan Gaeta Lung Cancer Fund proudly became an affiliate of ALCF.  And, since 2012, those of you in Georgia have been able to order Lung Cancer Awareness License Plates - a first in the United States.  85% of the annual tag fee goes to ALCF’s research institute.

You can also donate directly to ALCF via this link.  Please to watch the video and consider a donation during this important month.

Thank you,

​Joseph A. Gaeta
The Joan Gaeta Lung Cancer Fund

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8/15/2017

A new way to donate...

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The Joan Gaeta Lung Cancer Fund
​​Lung cancer matters, too. Nobody deserves it. And, you do not have to smoke to get it. Lung cancer kills more people than breast, prostate, colon, liver, kidney, and melanoma cancers combined. Yet, it receives a mere fraction of the ​attention and research funding. We are fighting to change this. 

Please help us in our continuing effort..... Donate today.
https://www.supportalcf.org/InLovingMemory/joangaeta

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11/1/2016

Kicking off Lung Cancer Awareness Month with Bonnie Addario

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We cannot think of a better way to kick of Lung Cancer Awareness Month 2016 than with this excellent Q&A with a leader in the movement - and our friend - Bonnie Addario.  Please read this inspirational and informative interview from Genentech:  https://www.gene.com/stories/qa-bonnie-j-addario

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6/22/2016

Attention, Delta Flyers! Check out the June issue of Sky Magazine!

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The Bonnie J. Addario Lung Cancer Foundation has a full-page ad in the June issue of Delta Air Lines' Sky Magazine! Way to go, guys!  Thanks for spreading the word and helping to save lives!
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8/31/2015

A Must-Read:  "Lung Cancer - Why You Should Care"

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Bonnie Addario, lung cancer survivor and founder of the Bonnie J. Addario Lung Cancer Foundation and the Addario Lung Cancer Medical Institute, pens a powerful piece for the Huffington Post today. 

Read it HERE and share it today!
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8/31/2015

TUNE IN TO "START-UP U" ON TUESDAY, SEPTEMBER 1ST! STARTUP LEGEND AND PREMIERE VENTURE CAPITALIST TIM DRAPER GENEROUSLY PLEDGES ONE MILLION DOLLARS TO CHARITY - INCLUDING THE ADDARIO LUNG CANCER FOUNDATION!!!

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Draper Will Donate the Money When Tuesday’s All-New Episode of “Start-Up U” Hits One Million Viewers

Burbank, CA (August 18, 2015) – Start up legend Tim Draper will donate one million dollars to charity if as many viewers watch ABC Family’s unscripted series “Startup U” on Tuesday, September 1 at 10:01PM ET/PT on ABC Family.
 
On Saturday, Tim Draper announced via Twitter and Facebook that he will donate one million dollars to charity if one million viewers tune-in to Tuesday’s all-new episode. Not only does Draper have a long history of donating to worthy causes close to his heart, but he is a champion of entrepreneurism; his life’s mission is to create a better future for everyone. “I believe in the series and the great work these kids are doing. What better way to support them than connecting it back to a worthy cause? This is a win/win situation for everyone, but especially the charities.”
 
Charities that will benefit from Draper’s benevolence are ones very close to his heart, including the Parkinson’s Institute (in honor of his mother, who fights this disease), Bizworld, Tourettes Association of America (his brother-in-law and nephews are affected), Smith College Women’s business plan competition, Endeavor (supports third world entrepreneurship), Defy (works with former prisoners when they have paid their debt to society, Cal Arts and California State Summer School for the Arts, and the Addario Lung Cancer Foundation (amember of his staff is a survivor).
 
Viewership will be measured by all methods, including mobile and online viewing, L+3 and L+7.
 
In Tuesday’s episode, titled “Bro’s & Bras,” it’s Evangelism Week, which teaches the students how to become experts at selling their brand. Tim putseveryone in yet another challenging situation when he sends them to San Francisco to sell men and women’s underwear to the many shoppers in Union Square. There’s a catch, though: they have to sell the undergarments based on only a picture, with no actual product. Frustrated by the process, Tony makes a decision that irritates Sequoia and his classmates. Sharon meets with resistance when she pitches Hotpoint to various venues around the Bay Area, only to have things get tougher when Tim puts her in the hot seat. Meanwhile, Michael Volpatt (Partner, Larkin/Volpatt Communications) and Charlie meet with several students to evaluate their brands.
 
“Startup U” is produced by Ugly Brother Studios, a Sky Vision partner. Mike Duffy, Tim Duffy, Tim Draper, Perry Dance and Ted Iredell serve as executive producers.
 
Part of the Disney|ABC Television Group, ABC Family is distributed in 94 millionhomes. ABC Family entertains and connects to audiences with bold, relatableprogramming that celebrates the epic adventure of becoming an adult, from first kiss to first kid. ABC Family's programming is a combination of network-defining original series and original movies, quality acquired series and blockbuster theatricals. “WATCH ABC Family” is an authenticated service which allows viewers with participating TV subscription services access to 24/7 live viewing of the network, as well as continued on-demand access to such popular series at home and on-the-go via a wide array of devices. ABC Family is also the destination for annual holiday events with "13 Nights of Halloween" and "25 Days of Christmas."
 
ABC Family Media Relations: Joelle Johnson, (818) 569-7746, [email protected]
 
For additional press materials, please visit http://www.disneyabcpress.com/abcfamily/
 
Facebook: www.facebook.com/StartUpUTV

Twitter: twitter.com/StartUpUTV

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7/24/2015

The Bonnie J. Addario Lung Cancer Foundation Honors Leading Lung Cancer Researcher with the 2015 Addario Lectureship Award

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Fred R. Hirsch, MD, PhD, honored at the 16th International
Lung Cancer Congress

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SAN CARLOS, Calif., July 24, 2015 /PRNewswire-USNewswire/ -- The Bonnie J. Addario Lung Cancer Foundation (ALCF) will honor Fred R. Hirsch, M.D., Ph.D., with the 2015 Addario Lectureship Award for his continued leadership and expertise in lung cancer treatment and research. Dr. Hirsch, CEO of the International Association for the Study of Lung Cancer (ISLAC), will receive the award at the 16th International Lung Cancer Congress held on July 30 – August 1 in Huntington Beach, California.

"Dr. Hirsch's contribution and dedication to lung cancer research is truly remarkable," said Bonnie J. Addario, 10-year lung cancer survivor and founder of the ALCF. "Dr. Hirsch is a cancer survivor which makes him very sensitive to patients and increases his commitment to their survival. We are thrilled to present him with the eighth Addario Lectureship Award to highlight his commitment to eliminate lung cancer worldwide. "

Known best for his unsurpassed research on the diagnostic tool, fluorescent in situ hybridization (FISH), colleagues David Gandara M.D., Associate Director, Clinical Research at the UC Davis Cancer Center and Roy Herbst, Ensign Professor of Medicine and Chief of Medical Oncology at the Yale Cancer Center have nicknamed him the "Big Fisherman."

Dr. Hirsch has been a professor of medicine at the University of Colorado Cancer Center and professor of medicine and pathology at the University of Colorado, Denver since 1999. He also serves as the conference president for the World Conference on Lung Cancer. Dr. Hirsch received his MD and PhD from the University of Copenhagen, Denmark and served as chief physician at the department on oncology at the Finsen Center in Copenhagen from 1996 to 1999. He has been a supervisor for many European and Asian post-doctoral trainees in his lab at the University of Colorado Cancer Center.

"There is no one in the entire world that has been more dedicated to IASLC and addressing lung cancer worldwide," said Paul Bunn, Jr., MD, distinguished professor, division of medical oncology at the University of Colorado and James Dudley chair in lung cancer research. "Fred has a unique perspective – he is not only both a pathologist and a medical oncologist but also has trained and practiced in both Europe and the U.S. He has been involved in studies of lung cancer diagnosis, staging, prevention, early detection and treatment that have revolutionized the care of lung cancer patients. He works diligently to bridge international ties for lung cancer and recognizes it is a global disease that requires a global effort."  

Dr. Hirsch received the Mary J. Matthews Distinguished Scientific Award from ISLAC, the Japanese Lung Cancer Society Merit Award, the British Medical Association Medical Book Award, The Annals of Oncology Award, the Lise and Gunnar Waerums Foundation Award, the Fru Agnes Andressons Memory Award and the Lung Cancer Foundation of America Young Investigator Award, among many others. He has authored hundreds of peer-reviewed papers and has current funding for his work on Squamous Cell lung cancer from ISLAC.

"Dr. Hirsch is working diligently to bridge international ties for lung cancer, sparking a global effort to address a global disease," said Addario. "We are honored to recognize him as a scientist, a physician and a friend."

Past Addario Lectureship Award recipients include:
  • 2014 Recipient: Roy S. Herbst, M.D., Ph.D., Ensign Professor of Medicine and Chief of Medical Oncology, Yale Cancer Center
  • 2013 Recipient: Tony Mok, M.D., Professor in the Department of Clinical Oncology, Chinese University of Hong Kong in Prince of Wales Hospital in Hong Kong
  • 2012 Recipient: D. Ross Camidge, M.D., Ph.D., Director of the Thoracic Oncology Clinical Program and Associate Director for Clinical Research, Colorado University Cancer Center
  • 2011 Recipient: William Pao , M.D., Ph.D., Associate Professor of Medicine, Ingram Associate Professor of Cancer Research, Director, Personalized Cancer Medicine, Vanderbilt Ingram Cancer Center
  • 2010 Recipient: David R. Gandara , M.D., Associate Director, Clinical Research, UC Davis Cancer Center
  • 2009 Recipient: Harvey Pass , M.D., B.A., Director of the Division of Thoracic Surgery and Chief of Thoracic Surgery, New York University Medical Center
  • 2008 Recipient: Paul A. Bunn, Jr. M.D., Principal Investigator and Director, University of Colorado Cancer Center

The ALCF has supported the Lung Cancer Congress for the past eight years and serves as a co-sponsor along with the IASLC. The annual three-day event provides physicians with practical information about the clinical implications of lung cancer screening, the latest clinical data impacting the treatment of lung cancer and novel agents and strategies that are changing the future of lung cancer therapy.

About the Bonnie J. Addario Lung Cancer Foundation
The Bonnie J. Addario Lung Cancer Foundation (ALCF) is one of the largest international philanthropies (patient-founded, patient-focused and patient-driven) devoted exclusively to eradicating lung cancer through research, early detection, education and treatment. The Foundation's goal is to work with a diverse group of physicians, organizations, industry partners, individuals, patients, survivors and their families to identify solutions and make timely and meaningful change and turn lung cancer into a chronically managed disease by 2023. The ALCF was established on March 1, 2006, as a 501c(3) non-profit organization and has raised nearly $25 million for lung cancer research and related programs.

Photo - http://photos.prnewswire.com/prnh/20150724/242089 
Logo - http://photos.prnewswire.com/prnh/20140730/132466 
 
SOURCE Bonnie J. Addario Lung Cancer Foundation

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9/1/2014

Lung Cancer on the Rise Among Women, Non-Smokers

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by Dr. Patricia Thompson
Originally published on 23 August 2014 by the Bonnie J. Addario Lung Cancer Foundation

As a medical oncologist, I treat patients battling a variety of cancers – from common types such as breast and prostate to rare cancers of the brain and bones. But of all the types of cancer I see, none causes patients as much fear and dread as lung cancer.

Such distress is understandable. The disease continues to be the leading cause of cancer death for both men and women in the U.S. More people die of lung cancer each year than the next three most common types of cancer – breast, colon and pancreatic – combined. According to the American Cancer Society (ACA), lung cancer is expected to claim the lives of nearly 160,000 Americans in 2014, accounting for 27 percent of all U.S. cancer deaths.

Another reason lung cancer is feared is that long-term survival rates are very low. Although five-year survival is more than 53 percent for cases detected when the disease is still localized (within the lungs), it drops to less than 4 percent when diagnosed after tumors have spread to other organs. Unfortunately, because lung cancer can be difficult to detect, only 15 percent of cases are diagnosed at an early stage.

Although lung cancer rates are falling overall, the rate has been increasing among two groups in particular: women and non-smokers. In fact, according to the National Cancer Institute, over the past 36 years the rate of new lung cancer cases among men has dropped by nearly a quarter, while the rate among women has risen 100 percent. The U.S. Centers for Disease Control and Prevention reports that more women die of lung cancer than breast, uterine and ovarian cancers combined.

Another notable trend is the increase in lung cancer among healthy non-smokers. The ACA reports that between 16,000 and 24,000 Americans who have never smoked die from lung cancer every year. If lung cancer in non-smokers were its own category, it would rank among the top 10 fatal cancers in the U.S. For reasons doctors don’t fully understand, most lung cancer cases among non-smokers occur in women.

The rise in lung cancer among non-smokers is one reason stigmatizing the disease is increasingly seen as inappropriate. While it’s true the majority of cases continue to be diagnosed among smokers or former smokers, lung cancer can also result from factors over which individuals have little control: genetic mutations, as well as exposure to radon gas, secondhand smoke, air pollution and asbestos, among others.

Much more important is to continue improving our methods of detection and treatment. Great progress is being made in both. For example, while chest X-rays are generally the first diagnostic imaging a patient might undergo when lung cancer is suspected, low-dose computed tomography (CT) scans are proving more effective at finding lung tumors earlier, when they are easier to treat.
The value of CT scans in early lung cancer detection is making such screening more common. Some medical organizations are now recommending routine lung screening for high-risk patients – defined as individuals 55 to 74 years old with at least a 30-year smoking history, and who currently smoke or quit within the past 15 years. These are also the patients that derive the most benefit from screening.

For patients diagnosed with lung cancer, advances in treatment options are offering more hope. In addition to new surgical techniques which no longer require full open-lung surgery, technological advances are making radiation therapy more precise than ever – targeting lung tumors and sparing healthy tissue. With brachytherapy, thin catheters carry radioactive ‘seeds’ to lung tumors to deliver high doses of radiation up close.

Chemotherapy is advancing too, with new drugs and medical technologies that can help increase lung cancer survival. One exciting development is immunotherapy, which uses antibodies and man-made proteins to bolster the immune system and train it to attack cancer cells. Ongoing research on human genes is also helping scientists develop therapies specifically targeting the genetic mutations that drive tumor growth.

What’s most important to remember about lung cancer is it’s largely preventable, but everyone has some risk. Given recent trends, women should be aware of the signs of lung cancer – a lingering or worsening cough, shortness of breath, chest pain, unexplained weight loss, hoarseness, among others – and not hesitate to seek medical care if concerned. Let’s raise awareness of this terrible disease because awareness helps find a cure.

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8/5/2014

Lung Cancer Strikes Younger Demographic

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7/23/2014

Clinical Study Aims to Investigate Genomics of Young Lung Cancer

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ALCMI Puts Spotlight on Lung Cancer in Young Adults

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San Carlos, Calif. (July 23, 2014) – The Addario Lung Cancer Medical Institute (ALCMI) today launched a new study, the Genomics of Young Lung Cancer, to understand why lung cancer occurs in young adults, who quite often are athletic, never smokers and do not exhibit any of the known lung cancer genetic mutations. ALCMI, a patient-centric, international research consortium and partner of the Bonnie J. Addario Lung Cancer Foundation (ALCF), is facilitating this first-of-its-kind, multi- institutional, prospective genomic study in order to identify new genome-defined subtypes of lung cancer and accelerate delivery of more effective targeted therapies. 

“It’s heartbreaking when you meet young adults with lung cancer, who should have their full lives ahead of them but instead are fighting for their lives because of the lack of lung cancer treatments,” said Bonnie J. Addario, stage 3B lung cancer survivor and founder of ALCMI and the ALCF. “This groundbreaking study will investigate why young adults under the age of 40 are getting lung cancer and whether they have a unique cancer subtype, or genotype, that can be treated differently.” 

Our evolving understanding of the disease and new molecular tools suggest that young age may be an under-appreciated clinical marker of new genetic subtypes. An important goal for this research study is to reveal new lung cancer sub-types of lung cancer requiring distinct treatment strategies. 

“Leveraging this study as a proof of principle, ALCMI is also characterizing other specific patient populations to support emerging data that lung cancer diagnostic and therapeutic interventions are more effective when individualized, and personalized approaches are brought to bear," Steven Young, President and COO of ALCMI, who also points out this study represents a unique public-private collaboration between the ALCMI consortium and Foundation Medicine, Inc. 

The Genomics of Young Lung Cancer study is centrally managed by ALCMI while the Principal Investigator (study leader) is Barbara Gitlitz, MD, Associate Professor of Medicine, University of Southern California, Norris Comprehensive Cancer Center. 

"This study lays the groundwork for discovery of novel targetable genotypes as well as heritable and environmental risk factors for lung cancer patients under 40,” Dr. Gitlitz said. "We'll be evaluating 60 patients in this initial study and hope to apply our findings to a larger follow-up study in the future." 

Other investigators include Geoffrey Oxnard, MD, (Dana-Farber Cancer Institute), David Carbone, MD, PhD (The Ohio State University), and Giorgio Scagliotti, MD, PhD and Silvia Novello, MD (both at the University of Torino in Italy). Patients may enroll in the study regardless of where they live, and will not need to travel to any of the above institutions. 

For more information about the study, please contact Steven Young, president of ALCMI, at (203) 226-5765 or [email protected]. Lung cancer patients living in the United States will not need to travel to any of the above institutions to participate (but may do so), and may learn more at https://www.openmednet.org/site/alcmi-goyl. Individuals living outside the U.S. may contact ALCMI at [email protected] for information on how to participate. 

Lung Cancer Facts 
  • In 2014 alone, more than 224,000 new cases of lung cancer will be diagnosed in the U.S., and the American Cancer Society estimates nearly 160,000 Americans will die of the disease.
  • The ACS estimates there are 400,000 people in the U.S. living with lung cancer, and about 8,000 of those are under age 45.
  • Nearly 4,500 people under 45 will be diagnosed with lung cancer in 2014.
  • Nearly 80 percent of new lung cancer patients are former or never-smokers.
  • Lung cancer takes more lives than breast, prostate and colon cancers combined and it accounts for 27 percent of all cancer deaths. It is the second leading cause of all deaths in the U.S.
  • Lung cancer is the leading cancer killer in every ethnic group and since 1987 has killed more women every year than breast cancer.
  • The five-year survival rate for lung cancer has changed little in more than 40 years – from 12 percent in 1970 to 16 percent today.

About the Bonnie J. Addario Lung Cancer Foundation 

The Bonnie J. Addario Lung Cancer Foundation is one of the largest philanthropies (patient-founded, patient-focused, and patient-driven) devoted exclusively to eradicating Lung Cancer through research, education, early detection, genetic testing, drug discovery and patient-focused outcomes. The Foundation works with a diverse group of physicians, patients, organizations, industry partners, individuals, survivors, and their families to identify solutions and make timely and meaningful change. ALCF was established on March 1, 2006 as a 501c(3) non-profit organization and has raised more than $15 million for lung cancer research. To learn more, please visit www.lungcancerfoundation.org. 

About the Addario Lung Cancer Medical Institute 

The Addario Lung Cancer Medical Institute (ALCMI), founded in 2008 as a 501c(3) non-profit organization, is a patient-centric, international research consortium driving research otherwise not possible, evidenced by ALCMI's current clinical studies CASTLE, INHERIT EGFR T790M, and the Genomics of Young Lung Cancer. ALCMI overcomes barriers to collaboration via a world-class team of investigators from 22+ institutions in the U.S. and Europe, supported by dedicated research infrastructures such as centralized tissue banks and data systems. ALCMI directly facilitates research by combining scientific expertise found at leading academic institutions with patient access through our network of community cancer centers – accelerating novel research advancements to lung cancer patients.

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